ShowMeBlog

Odontogenic Keratocyst

The following comment was posted to ShowMeBlog today:

"I live in the UK and first had surgery on redontic keratocyst on lower right mandible in 1995. The cyst recurred in 2004 and a further marsupialisation procedure was carried out. I have recently had another procedure to widen the hole in which the remainder of the cyst is located. I had to have one tooth removed in this procedure but am hopeful that this will be the final procedure. It will be a long process, however it hasn't stopped me doing anything and I would encourage people to keep getting regular reviews and x-rays and stay positive."
The comment was from Malcolm Crawford in the UK.

  The comment was left about a October 25, 2003 post here.

  A great many find the information here but it is hard for them to share and communicate with each other as you will see if you read the post and all the comments posted.
  There are mnay other comments at other locations in the blog.
  I have set up a message board that would be a big help to them but they never find the message board. 
    

Odontogenic Keratocyst

I have set up an Odontogenic Keratocyst message board.  I do not think anyone will find it or use it.  But it is needed.  An OKC is rare and because of that there is not much information on the subject.  People need and want to ask questions and find out what sort of success or problems that people have had.

Odontogenic Keratocyst Support Forum

A post from ShowMeBlog about OKC from Saturday October 25 2003

 

Technorati Tags: odontogenic, keratocyst, okc, oral, cyst, dental, lamina, mandibular, molar, maxilla, basal, gorlin, lesion, sinus

Odontogenic Keratocyst

We got great news about Russell. You know he has Odontogenic Keratocyst. He has a major cyst. A jaw cyst and the doctor said it was very big. Because of the cyst the jaw did not grow bone and his jaw has been paper thin. He has not been able to eat any food. Well Russ went to the DDS today and they did an X-Ray. It has been about five months. The cyst is half the size it was and the bone is growing back. That is the best news we could hope for.. Russ can now eat soft food. He does not have to return to the doctor until June. When the cyst is small enough the doctor will have to go in and remove it. But the new is good. Jimmy did not get to his doctor in time. He was 20 minutes late. I told him to take his cell phone and the doctor's number and if he was going to be late to call the doctor. He took his cell phone but did not take the doctor's number. Jimmy says that he has enough medication until his next visit. I hope he does have enough medication. Dar called into my room when she got home and told me that she had KFC. I went out and she was in a good mood. She talked to me about Russell's condition and then she called the family on the telephone to tell them about Russell.

Odontogenic Keratocyst

Today was a long day. LaDawna took Darlene and Russ to the Oral Surgeon. After they left I found out that Hilary was planning on going. Hilary said she had been telling Dar for five days that she was going. It appears Darlene left about an hour early. Hilary was very upset. At the Oral surgeon LaDawna and Darlene waited outside. It appears that Russell was taken inside and given an IV and put to sleep. The doctor then, as I understand it, took out a bit of jaw bone and put in a "window", I would call it a shunt, and I am not sure what else he did. After Russ was awake the doctor made sure that LaDawna and Darlene saw the X-Ray. LaDawna was shocked by the X-Ray. Russ has a very big cyst and almost no jaw bones on that side. The jaw bone is thin like paper. The doctor make it clear that Russ not to chew anything. No chewing of food or anything. He is to be very careful not to break the jaw. The doctor gave them instructions. Russ was sent home. When he got home Aaron helped him into the house and upstairs. Russ started to throw up. He layed in Hilary's lap and she took care of him for awhile. I think her taking care of him and Darlene staying in the other room ..may have helped clear the air and help with the problem between the two of them. Russ has a bunch of medication to take. He has a mouth wash, pain medication and other medications. He also has a syringe to stick in the port/shunt and attempt to drain the cyst. Russ got sick again later. Jimmy went and rented two movies. Darlene, Jimmy, Russ and Hilary watched a movie. LaDawna, Aaron and I went to Wal-Mart and got some more medication for Russ. Later LaDawna and Aaron said goodby to us and went to their motel. Tomorrow early they start their trip back to CA. I felt sad and sorry to see them go. I hope we don't have to wait four or five more years to see them. LaDawna has taken a bunch of photos. She will send the film in and then scan the photos and her photos will be here online in a few weeks. I wish I had the money to buy her a good digital camera. She in very good at photograpy and only wants a good digital camera. Russell has an Odontogenic Keratocyst (OKC Cyst). They are very rare. I did not know that Russell could be so brave and good about something like this. I found out something that I did not know...Russell did some research on his own on the Internet. Before they went into see the doctor he told LaDawna somethings. She asked if the doctor told him that information and he said no he found it on the Internet. He was correct ...later the doctor told them those very same things. We have to wait for the doctor to get back with us on the lab test. I am sure each of us has our own fears about all of this. From what little searching I have done on the subject... I am worrying about infection and about fact that they can return. Also I am worrying about his maxillary sinus. We all have to pull for Russell. We got to make sure that he takes his medication and keeps doing everything that the doctor said to do.